Hi everyone. I have now been waiting 3 months to have the blood tests for Siponimod and I have been told to just keep waiting. My MS nurse is on holiday and my neurologist is not contactable - only through his secretary. Does anyone have any advice on how to get this happening? Apparently, as the first recipient in the county, the ‘infrastructure’ takes time?
I’m on it as I have said before. The only thing you can
do is keep phoning them. In the end it was my ms nurse
that sorted it out, but I had to keep badgering her!
It’s so frustrating because you want to start taking it ASAP so you can get it working!! Until the nurse comes out to take bloods there is nothing you can do. If blood is ok it then takes time for the delivery people to get set up! I know exactly how you feel