Hello, this will be my first post, why I am here to ask if others might give me positive feedback and perhaps people here can put my mind at rest? I saw Neurologist just short of 1 year ago, who after showing me occlusions on my brain from MRi said he’d put me forward for using Siponimod, late november mayzent nurse came and took blood, heart rate and done a heart trace… apparently all good, basically things are taking ages, nevermind my syptoms. Am I doing the long game, depressing to say the least
Hi wary1
Get in touch with the MS Nurse to see where things stand.
I was originally going to go on Siponimod but that ground to a halt because my Neuro wanted to get Cardiology feedback to be safe/certain.
To get me started asap on DMT they put me on Plegridy with a view to changing to Siponimod when they got cardiology feedback (still waiting for feedback!).
I hope you get what you need, Plegrity? i’ll look that up, Im so long these days, my 25 y/o daughters word ‘dad your so long’
I dont get on with MS nurse, just sacked her so to speak and requested another, there’s 3 of them without being sexist, im not. Understanding to both my girls 25 and 30, but ms nurse rekons she understands me, she doesnt. Truly wish there was a male MS nurse tbh.
Thanks for reply hope your always as good and well as we can be