Hi gang, thank you all sooo much for your care and support..........wish we could all meet up and have a jolly good hug!
Right here`s how the hospital appointment went. It was just as chuffin` naff as I thought it would be.
Me and sis get me checked in at 9.20am for my 9.30 appointment.
we sat, as you do, wondering when you`re gonna get called. Then I noticed a `moving message` machine. It read;
`If you haven`t been called within 15 mins of checking in, please inform a nurse`.
So, when it got to 9.45am, I followed orders and beckoned a nurse, with a polite `excuse me...........`She said she wasn`t in that section, but would get someone who was. Another nurse came and asked my name and said they were very busy with all these patients. I said I realised that, but was only doing what the message said.
She went away. She came back, `What`s your name again?` I told her. She went away again and came back with, `Who are you seeing?`
I said `The MS nurse`. She went away again. Then Janet (MS nurse) appeared.
`I didn`t know you were coming today, Polly, but come into my room`.
I introduced my sis and then Janet said `So, how are things?` I said `Worse, I am now hoisted and have 4 carers`. She said `What have you come for?` I said, `I don`t know. You tell me.` Me and sis shrugged our shoulders.
So I went through what had happened in Jan with Dr Mir and the disapperance of my 2008 MRI showing 3 blobs on my cervical spine. I also showed her a letter from Dr Mir, saying she would speak to the ;last neuro who saw me, last year and see what they can come up with.
Nothing had been discussed, done or sorted.
Then Janet told me Dr Mir was leaving next week. I said, `Huh, well I won`t miss her, she doesn`t care!`` Janet said she felt the doc did care.
Janet said if I wanted, I could talk to PALS. She understood my frustration and agreed it was not satisfactory. Huh! An understatement, eh?
Then I said I would like a referral to Dr Lily in Leeds...a top MS chap.
Janet said dr Mir, would do it. I said,`But if she`s leaving, will she do it?` Janet said she would ensure she does.