First Rebif Injection Done

Everyday living
1

Hi everyone

Did my first Rebif injection yesterday… All went well. Phew. What a relief!!

Shazzie xx

2

Well done

3

great stuff.

have a glass of wine and some chocolate for medicinal purposes of course.

carole x

4

Well done Shazzie, keep us updated on how it works for you.

Jan x

5

Thanks so much for your replies. I really really appreciate it.

I did my second injection yesterday. All good. No side effects at all so far. I am feeling pretty good to be honest. Might be psychological because I am doing something to fight the little ratbag. Must still remember that it won’t mend me but just hopefully slow things down. Last time I saw my neuro he said that I was now SPMS and that Rebif is being looked at for SPMS as a lot of us weith SPMs are still having relapses so it will be interesting because I thought that Rebif was just for RRMS. Fingers crossed eh?

I did have a glass of wine and a take away last night because I was so relieved that they are going ok so far.

I’ll keep you all updated Jen, Barney, Carole and Jan.

shazzie xx

6

Hi shazzie. You sure he said sp? Didn’t think you would be put on an expensive drug that won’t help at all, as far as I understand it, as soon as you feel your mobility getting worse stop, rebif can do bad things as well as good. Wish I said no thanks, sorry to in positive but thought I should give this reality check so you are aware, hope it works for you. Best wishes

7

Thanks Squiffy.

I promise you that I really don’t need a reality check. I am fully aware of the pros and cons.

I was d/x in 2005 with RRMS and have deteriorated really badly over the past 2 years and have only just progressed to SPMS (with relapses). I can only go by how I feel at the moment and I am feeling good.

I will of course stop the Rebif if I feel it isn’t helping but fingers crossed I will do ok.

Sorry you had a bad experience with it but there are lots of people who it is helped and I hope I am one of them.

Shazzie

2 Likes
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Well done, Shazzie. I really hope it works for you. It kept me relapse free for almost 4 years and it was worth the side effects I had at the outset. I’m so glad you haven’t had any so far. I have always tried to avoid going to doctors etc over the years but when it comes to MS I will take whatever drugs they can offer. I’m on Gilenya now and so far so good. Here’s to drug cocktails (I think I rattle these days) and long may they keep working for so many of us

Tracey x

1 Like
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Thank you soooo much Tracey for your positive reply.

I am so pleased that it kept you relapse free for 4 years. Hope the Gilenya works as well for you.

Keep positive eh? Positive vibes are good

Have a lovely day.

Shazzie xx