Hi, undiagnosed here but waiting on the results which could be end of September…
I’ve been experiencing a range of symptoms from tingling to sudden loss of feeling in my whole right leg (which went upon sitting as quick as it came on), headaches which I know aren’t an ms symptom but related to my eyes? Blurry, double vision on and off, I seem to have consistently raised pressure in my eyes with these ‘attacks’. I feel attacks started around 3 years ago, but my last one (June to July) felt awful, I had several visits to a and e, urgent neurology appointment (was told the urgent wait list was 56 weeks phoned the ‘partner’ hospital and got an appointment within a week or so), 2 appointments with neuroopthamology at a different hospital and he has referred me urgently to an ocular motility consultant. This attack started the day I went for my whole spine, head and dwi mri’s on the 5th of august. At first it seemed sooo much worse than the last attack but is seeming to level out (except struggling to hold myself and walk down stairs/down the road). I have ms family history a couple of generations up which could have a possible link?? Anyway… I feel like I’m losing my mind waiting for the results as I can connect the dots with my symptoms as such but are my mri’s going to coo-berate how I have been feeling? I’m at the point where I feel like a pain in the arse and my mri’s are going to come back normal/showing nothing out of the ordinary! It sounds so so wrong of me but started hoping it shows ms so I don’t feel like I have fully gone out of my mind! I feel like half of it happens so quickly on occasions that I imagine it and it’s ‘just a headache’… can anyone help with the wait for results? Or proactive things I can do? I have requested scans and records from neuro ophthalmology and I’ve requested my report - not back yet and requested my scans on a disk or as images. I’m a very impatient person but at this point I just want answers especially those that don’t make me feel as these are ‘all in my head etc’. My neurologists secretary has said she’ll try and hurry them up in a week and a half but again, what am I supposed to do in the meantime?? Do I ring and ask for a lumbar puncture to help the ‘bigger picture’ with my mri’s or is this all in my head? I’m finding it so so hard to concentrate on anything other than my results and I need some help/advice or anything really!! I can provide whatever info 
I wish I could suggest how to help with the waiting, but have nothing to offer beyond the usual ‘keep busy’, which is right but not helpful! From personal experience, the best thing to do is to engage on activity that concerns other people’s problems rather than yours and soaks up your physical and nervous energy. Just don’t flit about the place, scrolling through social media and doom-scrolling in the Net, picking up and putting down tasks without engaging in any of them. In other words, don’t fall into the trap that I usually tumble into! 
Good luck with it all.
I don’t know how to keep busy atm so much needs doing but I have no energy or motivation! That’s exactly what I’ve been doing and feeling! I am like this with anything oops! Thank you!! How did you get through it all?
Yep, all sounds familiar. Just hang on in there. The time really will pass.
Hi, im feeling the same its awful 
i have a mri on tues, results will be on saturday, i feel so anxious all the time, not sleeping ect currently have numbness on the left side of my head, neck, face, shoulder, arm, hand and fingers, been there for 5 weeks however i appear to be getting some feeling back over the past week, the dr said to me the waiting is the worse bit but im also so scared about whats causing my symptoms and what will be said next week. Its so hard to try and relax, hope it gets a bit easier for you soon.
Hello,
Yeah it is awful waiting around! That’s a pretty quick turnaround though!! The waiting is definitely the worst! I had the same symptoms for about the same time with my last attack, it’s not nice! I remember walking to my mh appointment before the start of my last attack and my whole leg went numb, couldn’t feel it at all, dug my nails in and nothing, it scared me! Fingers crossed we get the answers soon. It’s very hard, thank you you too!