Hi. This is my first post on the forum so going to give some background.
I suffer from hemiplegic migraines which affect the left hand side of my body during an attack, I’ve had them for years so I know the symptoms and what an attack is like.
On the 25th of January this year my legs gave way and i lost feeling and movement in them along with my left arm, I was lying on my kitchen floor for 2 hours until my mum drove from her house (an hour away) to rescue me as my partner was in London for work that day (we live in Scotland. I was in hospital for 5 days, 3 of those days i couldnt even feel my legs never mind move or walk. I didn’t have a headache which is why I knew it wasn’t a migraine. The neurologist eventualy decided it was functional after i had an mri scan of my spine. They didnt scan my head despite me asking if they could as I have the migraines anyway but the spine scan showed nothing. I was sent home with a stick and still cant walk without it outwith my flat.
I have other symptoms aswell including nausea, bowel problems, blurry vision, concentration and memory problems to name a few. The most worrying thing is that I have a feeling of electric shocks shooting up my spine that make me spasm. This happens a few times a day and is painful.
My mums friend has MS and has a lot of the same symptoms. I dont want to self diagnose but I dont believe that this is functional and there is nothing the doctors can do. I can’t keep living like this either. I am waiting on a neurology appointment which I asked for in February, Ive been told I might get one next month.
I’m not very good at explaining what’s going on and dont know if i’ve done this justice. I’m just scared and feel alone and thought I might meet some people who understand what I’m going through on here.