I saw my MS nurse this morning- she’s lovely! Was with her for over an hour, it was so nice to have a sit down and a full comprehensive conversation.
I now know the process… go see MS specialist neuro (QE Birmingham) who will sign me off for DMDs (after I’ve shown him I can walk 100m, piece of cake!) then back to ms nurse to get them. Best part is we get to choose which DMD we want! How ridiculous- they’re not allowed to recommend… So I’ve been sent home with 5 DVD “gift” boxes from the different manufacturers to choose. These bloomin boxes are more posh than fancy holiday brochures. Basically the manufactures are doing their best selling techniques- there’s even a keyring in one of them lmao. I wonder what I’ll be watching on TV tonight lol
Once I’ve been started on the DMDs I will have to see her months 1,2,3,6 and 9. Then will see her once a year and the MS neuro once a year for an MOT (blood test and MRI) just to make sure nothing’s getting worse.
I feel a lot happier now and so glad to be out of limboland and have a clear direction and I have a lot of confidence in my MS nurse. Just need the appointment to come through for Birmingham now! Oh and to decide what DMD I’d like…so what did you all choose and why? xxx