Finally.. MRI scan results

Well, after speaking with my GP and several nurse practitioner’s at my surgery in recent weeks they have received the results of my MRI scan that I had back on the 01st July. So now all I have to do is wait. Apparently they have no appointments until Thursday 23rd of October to let me know what it looks like. Now, I know that you can have an app or account with the hospital but I don’t. So it’s a waiting I shall do. Although I’m not sure why my neurologist has delegated it to my GP. They’ve never told me before as it’s always been the neurologist. Watch this space and I’ll let you know what, if anything has changed since my last scan.

So as I promised. I’ve just received that long awaited telephone call from my GP. Not all good news but, hey ho it’s part and parcel of ms. So the MRI scan I had nearly four months ago now shows some new lesions. Showing new lesions in my brain. Neck and spine are clear of any new lesions. She’s made an appointment to see me tomorrow. I know that the neurologist has already said that I’ll see her next February although I haven’t got an actual date for that. Oh and I asked seeing my ms nurse in two weeks time.

That’s a long wait for you and sorry to hear about the new lesions. Can they change your DMT? I Hope you get the answers you’re looking for tomorrow at your appointment. I think it varies from hospital to hospital, how quickly you receive the results back.

I’m not on any DMD treatment @animali never been offered any. Had my ms for quite a while now. Not sure if my GP would be the person for that anyway. Most likely would have to be a neurologist. And I’m not seeing her until February next year. Just have to see what she says about the new lesions and how many there is, tomorrow when I see her. My GP that is.

Sorry to hear that, and it would have to be your neurologist I think to prescribe the DMT as long as the criteria is met. I’m surprised your GP is giving you the results and not your neurologist ? Mind you I received mine through the post.

I hope you get some answers tomorrow, and hope they can bring forward your appointment with your neurologist to hopefully start you on a DMT. :crossed_fingers:crossed for you.

Yes, thanks @animali . I was surprised myself that my GP has given me the results and not the neurologist. Seems pretty strange to me. Maybe others have also received their scan results from their GP and not the neurologist? Or even in the post like you?

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After seeing my GP this morning she said that there’s multiple new lesions. How many? She couldn’t tell me. Advised me to ask my neurologist! Hmm, might have thought of that myself. So, roll on February 2026 when my next appointment with my neurologist is supposed to happen. I do have the appointment with my ms nurse in two weeks time. Not sure if she’ll be any wiser than my GP when it comes to knowing how many new lesions there might be. But, I can be positive and hope she might know more.

I really hope you these questions answered when you see the ms nurses, hopefully they’ll be able to convey your concerns, you could also try phoning your neurologist secretary to try and push things along for you.

I’m just going to wait until the week after next when I see my ms nurse to see if she has any more information than my GP had.. another two weeks isn’t going to make much of a difference after waiting four months! And then @animali I’m going to try calling the neurologists secretary see if she’s able to help.. that’s if the ms nurse hasn’t been able too.

I’m hoping she’ll come armed with more information for you. If I was you I’d make a list of your concerns to take to the meeting, to make sure you don’t forget anything as it’s easily done . It’s sounds like you’ve got a plan of action, I really hope you get the answers you’re looking for. :crossed_fingers: for you.

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That sounds really tricky. I wonder if there is any way of getting in to see the neurologist sooner? It sounds like your are in limbo in some ways.

I’m going to see what my ms nurse says the week after next @lnp8acr . Been several years since I last saw her: those long ago COVID years was the last time.

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Blimey that’s a long time. I hope the appointment is helpful