I have been reading about Modafinil as I have really REALLY bad fatigue. I have already tried Amantadine and it didn’t really work. I’m sure everyone can sympathise about trying to go to work day after day when you feel like sh*te!
Months ago I asked my doctor if she would consider prescribing Modafinil for me. I got a resounding NO! Apparently it is not licensed for MS - just for Narcolepsy I think. SO…I tried my MS nurse who wrote to my GP telling her that Modafinil has shown very good results for MS fatigue and she would back me having it.
Went back to my GP…she started the process on the computer but then the computer said NO!. There followed some to-ing and fro-ing. Correspondence with Neurologists etc etc etc but nothing could be done.
SO…I booked an appointment with a private neurology consultant. We discussed everything in depth. He couldn’t understand why a helpful (and not too expensive drug) would be prohibited in this way. I do understand from reading into it a little that people were abusing the drug to help them stay alert when they were studying/working etc etc.
Private consultant conferred with consultants at the hospital where i’m seen and to cut an already long story a bit shorter…I have finally got a private prescription for Modafinil.
I have an appointment at the hospital in a couple of weeks, and I did need to have an ECG to check my ticker was working properly. But if all is well - and if it works - the hospital can liaise with my GP and put a system in place whereas the GP can prescribe in the future.
I’m picking it up from the pharmacy this evening and I am SO excited to see if it works.
Watch this space…if it works I might get really annoying and buzzy (I hope)