I have been feeling very low the last few days and saw from some previous posts that others are too.
One which was saying why does this person say everything’s fine when it’s not. That’s what I do even to my family who don’t know what it’s like. Because I’m on treatment and it’s working very well and I’m walking well (although with a few falls!) they think I’m absolutely fine. I’m not and I don’t know who to tell who will understand.
I have seen the physiotherapy team at Queen Square where my consultant is based but only because I requested it. I haven’t seen my consultant in ages! I am now on the waiting list for FES. Has anyone had this treatment? I don’t really understand how it works. Any experiences would be very welcome.
Do you know what it is? Basically a little battery operated box that sends an electric charge to the muscles in your leg when you lift your foot off the ground. This stops your heel from dropping as you lift your foot. It makes it easier to walk and makes it less likely that you will trip over your own foot and fall. I love mine - it makes a huge difference to both walking and going up stairs. It’s a bit of a faff putting it on in the morning but, for me, well worth it for the help it gives me.
On the whole, what Sewingchick says is right-on!! I would just like to correct one thing…
FES does NOT lift your heel …it lifts the front (ball of foot and toes) part of your foot so that, as you walk, you plant your heel on the ground first (…as you would in ‘normal’ walking) and are therefore far less likely to catch your toes on the ground and stumble/fall as a result. (…I’m sure that’s what Sewingchick meant !!)
I totally agree that this device makes a huge positive difference, and couldn’t cope without mine.
Here’s hoping you’re approved for FES soon, and that it helps you as much as it helps others using it
I had to wait ages for my FES, but when my consultant recommended that I have one, all of a sudden I was allowed. I can’t talk up the FES too much as it is easy, totally painless and makes life so much easier. You will wonder how you ever got on without it.
Hi Susie.How is your FES being funded? I want to go down this route but my neuro physio has said not to hold out any hope as NHS/Dorset do not fund this, but all medical people agree that I should have it. I’m going to have a fight on my hands to tryand secure this but I’m desparate. Linda x