I am spending 90% of my life lying in bed the last 5 weeks, luckily its in the dining room amongst all the hustle and bustle. I have numb buttocks constantly and suffer a frozen back which only lasts for 5 mins once a day but is worrying me, my spasms are happening every time I move and they are so painful, I have headaches, and shoulder &neck pain on the opposite side to my spasms, I’m having really bad abdomen pain on my right side, I’m constantly tired but can’t sleep. Can’t stand or walk for more than a few minutes before my back and legs give way.
I saw the consultant on Xmas eve, who recommended I now take 50mg of baclofen, I have a foot brace which helps to lift my drop foot but my back won’t allow me to walk. Urine sample taken but received a call from MS nurse this a.m that it needs repeating, so I need to get up tomorrow before 8 am get to g.p surgery do my sample and request an appt about the pain in my abdomen. I was very close to going to A&E last night due to the pain but didn’t have the energy.
My house is a mess no one is doing any real cleaning up and its driving me mad, I’m contacting S.Services after the holidays to get some help. Had a massive argument with boyfriend again about my kids so he’s gone home, I love having everyone around me but the stress of it all is too much. I’ve tried doing some chores but its ended up in me falling or banging into the furniture resulting in several bruises so I’m not doing it anymore.
I’m taking 150 mg of pregablin & paracetamol its making me foggy but isn’t fully killing my pains.
Love to be able to let it all out on here.