Hi I have been on here a while now and posted a fair few times. The last few weeks I’ve felt so much better. I seemed to have constant cramps in my legs and spasms were an on going issue, a long with other things, a lot of them sensory. Thank goodness my legs no long cramp and my spasms are just ever so slight. All I seem to get at present is a burning feeling in my legs mainly if I’m busy and probs too hot in my jeans or if I’m too hot in bed, this all quickly resolves as well. Now I’m feeling a lot better in some ways it is easy to put everything to the back of my mind and just put up with the few odd bits that happen. After a clear brain and spinal MRI a few months ago, my neuro referred me to a neuro psychiatrist, whom I saw last week. The neuro psychiatrist asked me the usual questions psychiatrists ask, about my childhood etc, which I answered that it was all normal. He also asked if I’ve had psychiatric problems before, which I haven’t. The appointment ended with him saying that my neuro is convinced I do not have ms so the whole thing is probably a psychological problem. However he also told me he would like me to see my neuro again in 6 months as if I had ms if will have progressed by then and then after that he would treat me for a psychological problem. I did tell him I have a second opinion appointment coming up soon with another neuro, he then said that he would be happy to treat me sooner once I gave a second opinion. Sort of left the appointment more confused than when I went in. I would be really happy if this turned out to be psychological but at present I’m struggling in fully believing this as the man hasn’t really told me he thinks it’s psychological if he wants me to have my second opinion first? He also said though that if this is psychological that I need to come off my meds, mainly the gabapentin. Has anyone else had this sort of thing happen? Or does anyone know of others who have had all these symptoms then go on to find out it is actually psychological? At the moment I’m left feeling like I just want to ignore the whole thing, not go to appointments and just do my best to ignore symptoms when they crop up, however another part of me knows it is better to get to the bottom of all of this. Also if my symptoms have improved so much, if it were ms, I’m guessing that’s relaxing remitting and at the age of 39 with clear brain scans, is it highly u likely that it could be ms? Sorry for the long post but just hoping maybe someone relates to what is going on with me at this present time. Thanks Jo x
Just re read and didn’t realise I’d done so many typos x
hi, why were you put on gabapentin? Is it possible its the reason you are feeling a bit better? I would be looking for a new scan for the second opinion myself. good luck with getting things sorted.
Hi deadchick07, thanks for the reply, been on gabapentin since I first visited the neuro in November for my nerve pain, was also given clonazpam to take at night when my legs were bad. Could never understand why if he thought it was pschcological that he gave me meds. But like he said to me he believed I have what’s going on but that it’s psychological. I have weaned myself down slightly of this med whilst I’m feeling better than I did but who knows it could all return. The whole thing is just confusing me now. I’m at a point where I’m wondering myself if it could just be my brain playing tricks on me but I guess time will tell x
Hi Jojow,
its a merrygo round and I also feel at times I just want to jump off and try to ignore whats going on. But keep faith and beleive in yourself. You know what you feel, what your symptoms are, don’t let anybody take that away from you. Take time out by doing something you like and spoil yourself, be nice to you. Then when you feel more in control, rethink your stratiegies. My spelling is also so bad, lets hope they eventually put a spell checker on here, which can’t be sooner enough for me.
{{{{{{{{{hugs}}}}}}}}
Hi poppyseed thanks very much for that. It is all frustrating. Just lately I have been managing to take time out from the whole situation and been busy enjoying myself with my kids. The times I seem to get frustrated seems to be when I go to appointments and come away more confused than when I went in. Gonna go clothes shopping and have my hair done this week I think, not treated myself in ages. Thanks a lot xx
I am so glad you are going to re-invent for the Spring with a new Hair cut and clothes, I think I will follow suit. You are right the more appointments you go to the faster the merrygo round goes, believe in yourself and you will survive this.
takecare and enjoy xx
Hi hun. first off…hope the retail therapy is great…it always works for me!
Now, to your questions…I have been seen by around 16 neuros, over as many years.
I was strongly suspected of and even wrongly diagnosed with having PPMS, as my symptoms were very typical of that. But none of the myriad of tests I had proved MS at all.
So my current diagnosis is only half a one. No-one knows why I cant walk!
But all the time i was under investigation, no-one ever suggested it could be psychological. I actualy asked if stress could be the cause, I was under great stress at work. i was told a definite no!
I have read the same thing many times here…ie neuros suggesting patients should see neuropsychologists…with some poorly people even being discharged…madness and very uncaring and cruel to my thinking.
Let`s hope your 2nd opinion comes up trumps.
luv Polx
Hi Polly thanks for your reply. Yeah I do have trouble accepting it could be psychological but am also hoping sort of that it does prove to be and I have been proven wrong as obviously I’d prefer not to actually have anything. I have read about all you went through that would have driven me crazy I think. All so strange this neurology business as even neurologists seem to get confused over it. I just wish that if any illness had picked me that it had been something that was easy to diagnose as I’m sure lots of us on here feel. Hopefully it won’t take quite as long for me as it did for you to get some sort of diagnosis. Best wishes Jo xx