Hi i was diagnosed with MS 6 months ago, I haven’t quite got my head around it yet, i’ve pretty much carried on as before, however I am struggling with weakness in my arms (lifting the kettle, brushing my teeth, drying my hair etc) and legs and i’m sooooo tired, it’s the sort of tired that doesn’t go when you get up and do something which is how i’ve managed in the past, i’m dizzy very unsteady on my feet, i don’t know how to separate which symptoms are MS and which are due to disc problems in my neck and back, MS Nurse and Physio have conflicting opinions.
I’ve been on DLA for years with an indefinite award, i’ve just received a letter saying it’s due to end and I now have to claim PIP, 40 pages !! i’m terrible at filling in forms, looking down at the page makes the dizziness worse and I never know what to say about myself, I could explain all day about my Husbands illness (Behcets Disease) and how it affects him etc but i’m just not good at talking about me.
Does anyone have any advice ? Thankyou