Hi everyone I’ve just joined because I’ve been referred to a neurologist for possible MS but there is a 12/18 month wait I was hoping to share some of my symptoms to see if you have had any?
Last summer I went to the gp because it felt like I was sat on my phone, a buzzing sensation in my bum! It lasted about 3 weeks.
I’ve had 3 lots of an intense vitamin d course as my levels were so low.
This summer I presented twice to the walk in centre because I felt like I couldn’t breathe, it felt like someone was pushing on my chest and this lasted a couple of days at a time for about 2 weeks.
Tingling and electric shock like pain in my hands and toes.
Feeling of water running down my calf (happened once a few weeks ago)
Unable to concentrate like I used to.
A burning sensation in between my shoulder blades not related to movement.
A feeling of a lump in my throat and feeling like I can’t swallow properly (even though i can)
Recent bloods showed elevated levels of ESR and CRP.
In the last 4 days if I put my arms down by my side and raise my right hand slowly there is a slight ?tremor but I’m not sure and I don’t know if I’m making these symptoms worse in my own mind!
It’s so hard because I have 2 boys (9+2) and I worry what their lives will be like if I do have this disease.
I’d be grateful for any advice x