Hi everyone, bit of an update and probable last post from me as I don’t really belong here! Thanks to anyone who has replied to me, now and in the past.
Anyway, I received a copy letter from Neuro to my GP and my LP and VEP were normal so does not think MS! Phew, obviously I am REALLY glad but my problem now is this:
Originally the Neuro said he would see me in clinic to discuss results but this is not now happening, I am not getting an appointment so I have no real answers about what the bright spots on my MRI (numerous T2 hyperintensities in the white matter of brain) are and what is causing all my symptoms, maybe it’s just fibromyalgia? The radiologist said it could be small vessel disease, does this mean strokes, dementia? I am only in my 40s and don’t smoke but this is greatly concerning me.
So, as it stands, I am still really ill, yesterday I was so dizzy, I had to walk around the house holding onto the walls, today it is a little better. But I have no real quality of life, I cannot work and don’t go out much as I feel so awful. I also have tingling face, tongue, numb patches of skin, fatigue, double vision, creeping flesh sensations, visual disturbances. I have had l’hermittes in the past.
So do I just try and carry on with these symptoms, should I go back to GP and see if I can discuss the brain MRI findings with them and see if they have any more ideas? What would you do in my situation as I feel that I have had all the tests now and still no answers?
I am grateful for any ideas