Hi, I've posted a couple of times now and the support is always fantastic. To recap, I've had sensory problems since 2009 - left side of face numb, numbness in feet, but generally ok. 2 Mri's were clear and so too the LP. In october 2011 I had severe ON, treated with 5 days of IV steroids. Once again MRI was clear. Since last October the numbness in my face is worse (strangley relieved a bit by my glasses!), both my hands are numb, tingling in my mouth, dreadful taste in my mouth, tingling across my head and ringing in my ears. My legs tingle as well, like they are plugged in. My muscles twitch. And now I've started to feel really dizzy, like the ground is moving. Had an LP 4 weeks ago and my Neuro appt has been brought forward to next thursday - pleased but nervous - seems ominous to me. I saw an Infectious Disaeses person at the same time. He wrote to me last week and said its def not an infection. He said that the Neuro wanted to do more tests - what tests are there left?. It seems to leave MS and Neurosarcoidosis. Karen, is it possible to be diagnosed with MS with a negative MRI but a positive LP?
Plus I've gone back to work today after 6 months off (I'm lucky, good T&C). Everyone is being nice and supportive. But I know I'll be watched to see if I'm 'up to it' I know I'm good at my job but the doubts creep in. I can't believe how bad I've felt today, I didnt feel this bad last week.
Sorry for the moan, just feel despondant (and dizzy!) I'm terrified the neuro will have some answers and at the same time terrified he'll just say he doesn't know.