I was told from looking at the lesions on my mri my Neuro suspected ms, along with two doctors who saw me in a&e. I’ve had 2 clinical episodes which left me unable to walk well for months as well as a list of other horrible symptoms. Anyway my lp was clear and guess what!? Neuro said good news it’s not neurological! Uhh?? Lesions in ms areas of the brain, he said thought ms so how can a test that has a false negative of 10-15% be used to contradict the mri he was saying was so bad. I don’t want an ms dx but, at least explain what else it could be, surely it has to be neurological? after telling him about bowel/ bladder issues, I’ve had another mri on spine, waiting on results.
Tbh he is a locum and I don’t trust him, I’m biomedical scientist and know the lp shouldn’t hold that much weight. I have also spoken to the doctors I work with who are furious.
I can defiantly understand any one being fed up of limbo land. I started with vertigo last week which has made my legs go weak too now, I’m getting very worried it’s going down the same path as before! I can’t cope with feeling sick from the dizziness 24/7 any more, it went on months last time. I have two kids, one a toddler and not being mobile is too much without walking aids or help without a dx! What to do?
Thanks for the ear, I just need any stories of hope of getting some help??