Im not sure if this question has been answered previously, apologies if it has.
My neurologist is happy for me to try Fampridine for my ppms and will issue a private certificate for the drug. That was the easy part, what is proving difficult is finding a way to source and try the medication. I’m based in Ipswich so it’s not currently available on Nhs prescription and I’m aware there will be a cost to myself, which will also determine whether I can afford it .
Any help/info would be appreciated.
That is great that your neurologist recommends Fampridine, they usually send your prescription to a private company, once they have sent it, they will contact you or you can contact them for payment and arrange delivery, please ensure your ongoing prescription request are done to ensure continuation. I would chase your neurologist for a update.
Thanks Gracy2020 , although the way i understood the neurologist was that I would source the medication myself , if I’m no wiser come the end of next week i’ll contact him . Cheers
I got a two week free trial. Now pay £186/month from a company that delivers called Sciensus ( was Healthcare at home).
Think my neurologist sends the prescription and they contact me to arrange payment and delivery.
Just contact them and ask.
Hope it works, does for me.
I don’t know how you are suppose to source it yourself, if you don’t know who to contact, but if you don’t hear anything from the company, please chase with your neurologist.
To be fair, once the company get your prescription they will contact you, forgot to say the 1st month trial is usually free, so you can decide if you want to continue, all the best.
Thank you , it seems this is the route I will take which sounds simple enough and thanks for adding the cost which would be within my budget , I will contact my neurologist next week with this way of going forward (maybe this is a first for him) . Can i ask how long after taking Fampridine did you notice improvement.
I noticed a difference after about 2 weeks. I’ve been on it now for 4 years. Recently cut down to 1 tablet per day then none. Walking so much worse so back on 2 a day.
Have to be taken 12 hours apart. Either 1 hour before food or 2 hours after.
I take at 10am then pm.
Hope you can give it a try.
Thanks for the info , hopefully I’ll get to try it soon .
Thank you , hopefully I’ll have something in place soon.