Exercise, Stretching and Movement Good but there is a downside

Symptoms and treatments
1

They say that exercise, stretching and movement is good for you but I find there is a big downside for me.
After I do these I progressive tighten up. In MS speak I experience increased spasticity and some pain. Walking becomes near impossible. Increasing Baclofen does little. Tried CBD again nothing.
I’ve discussed with my NHS physio couldn’t say why or offer a solution. Went private similar response–keep doing the exercise.
Consulted a Specialist Neuro Physo again couldn’t explain why nor give a solution.
What do forum members suggest?

2

I’m the same.

You have a choice of stiffness due to inactivity or stiffness due to activity. Swimming is the least bad exercise for me because it is so gentle. I use a float between my thighs and then once top half is loosened up, try a few lengths with leg kick. It knackers me for a day but worth it for feeling normal for a little while.

Also go to an osteopath every 10-15 days: more than a massage, more a deep manipulation of the pelvis, hips and thighs. By contrast, a neurophysio issues you a sheet of exercises and leaves you to get on with them.

Graeme

1 Like
3

Hi GCCK,
Thank you for taking the time to share your personal experience.
I like your suggestion about ‘swimming’ and I’ll give it a go.
Now the one I really like the sound of is osteopath. First time I’ve heard of this. I’ll definately follow that one up.Have consulted Mr Google and there are a number near me.
Thank you for that.
Best wishes
Bob

4

Hi Bob
Be sure to look for each osteopath’s specialisms. Mine lists on her profile “symptoms related to autoimmune disorders and degenerative conditions”. For most osteopaths, the bulk of their work will be sports injuries etc. The crucial difference for “us” is with a declining condition, they can’t patch us up and send us away better again. We understand the mindset - the right osteopath will too.
Graeme

5

GCCK. Will do. Again thank you for your guidance and support.

6

I get the walking difficulty too, if I’ve overdone the exercising. I try to keep it between 25-30 minutes, because more than that, I know I’ll start becoming giddy. It’s about finding the right workout-rest balance tbf.