Hi everyone, my sister has MS and was wondering if anyone has followed Dr David Wheldon’s schedule of treatment?
l was very interested in it when it was first mentioned on here. Still have not done anything about it. l believe he is based in Bedford - hope l have got that right- bit too far for me to get to.
Now you have jogged my memory - l shall have another look - thanks for reminding me.
Anything is worth trying. l think it is his wife who has MS.
F.
Here is a video about what I think you are referring to. Sorry I can offer no endorsement since I know no more than what is in this video. You can look up FL1953 for different theories.
Thanks David, lnteresting video - and whats even more interesting is the link the Australian doctor made with narrowed veins -CCSVI - and that the cause could be infection - so he is putting his ms patient -who has had such a good response to angio-plasty - to also have the anti-biotic treatment. As he says that the angio-plasty will need to be repeated.
l believe that Dr Wheldons treatment is non-profit making.
F
yeah i seen this a while ago and i was mildly interested in giving it a bash myself. Still havent done anythin about it, no enquiries made, but id love to hear from anyone who does decide to try it. Whats the worst that could happen?You cant get MS twice
That a very valid point Raymond - you can’t get ms twice. Thats a remark l make when l have been caught out in the rain whilst riding or taking the dogs out [on my scooter] ‘you only get wet once’.
l will contact you if l do - no - WHEN - l contact Dr Wheldon and see what is ‘occuring’.
What have we got to lose?
F
Francis, I have had no contact with Dr Wheldon so don’t know. However I think we need to guard against demonising someone who does something for profit, for instance if he is a private doctor offering this or any other treatment then my view would be that if he is charging reasonable fees for his time and the patients are fully aware of the experimental nature of what he is doing and the costs of the drugs offered are at reasonable prices then I think that is perfectly acceptable.
I deal with many profit making organisations, profit making is not a crime inside or outside medicine. It is some of the immoral processes that go on in businesses both inside and outside medicine that go on that the authorities should address not the profit making process itself.
This video is a very glossy production, but it fails to address several problems and it is very biased.
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If everyone has been exposed to the bacterium by the age of 20, why bother testing for it?
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The MRI shown in the video can be explained as perfectly normal recovery from an MS attack. It is not uncommon for MS lesions to disappear completely, in the absence of any treatment. It can also be explained as recovery from infection-induced demyelination, e.g. ADEM. These one off attacks can cause widespread lesions that reduce and/or disappear with time, and without any treatment. They can affect anyone, including people with MS. I suggested this to Mrs Wheldon herself when she posted on this topic last year, especially as she had had longstanding, mild MS prior to this sudden outbreak of bad symptoms. Unfortunately no one considered it at the time, or since. However, given these considerations, the MRI “evidence” presented in the video means little, if anything. Replicate this in dozens, preferably hundreds, of patients while others have no such changes and then it might be relevant.
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The CCSVI / MS theory has been completely undermined by research. See, e.g., http://www.nature.com/jcbfm/journal/vaop/ncurrent/full/jcbfm201331a.html which presents a thorough, and damning, review of Prof Zamboni’s methods. By happily accepting a link to CCSVI, Dr Wheldon also undermines his own theory.
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Dr Wheldon is an expert in infectious disease. His wife has MS. He believes MS is caused by an infection. Prof Zamboni is an expert in vascular conditions. His wife has MS. He believes that MS is caused by a vascular condition. When people seek answers, they tend to start with what they know. Unfortunately, that can lead to hope overcoming truth.
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I believe that Dr Wheldon has treated several patients and yet no data have been published to my knowledge. This is not encouraging. (If anyone has a link to published data, I’d be grateful for the info - I’d love to read it.)
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The Faroe Isles story has been used before when someone proposed that MS was a sexually transmitted disease. The paper was ridiculed. Although Dr Wheldon has changed focus from sex to respiration, it remains pure speculation.
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It is almost universally accepted that MS is caused by some virus or infection along with vitamin D and genetic predisposition. Most people believe that the Epstein Barr virus is involved. All that Dr Wheldon has done is suggest a different agent. What he has not done is explain the incidence of Epstein Barr in people with MS.
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What are the potential side effects of at least a year’s worth of multiple antibiotics? If the bacterium is so common, why wouldn’t we just catch it again? Would we actually have to stay on the drugs forever? How long has Mrs Wheldon been on the drugs? She was still taking them in the video.
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MS is unpredictable. I once met a woman who had had an horrific relapse, resulting in her being a full time powered wheelchair user. She had not progressed or relapsed since this. It had been more than 8 years. Her cure? Nothing. Absolutely nothing. No DMDs, no antibiotics, no “liberation”, no anything. Before anyone says, “But she’s just one woman,” remember that so too is Mrs Wheldon.
If long-term use of a cocktail of antibiotics is safe, then it’s probably worth a try, but I for one wouldn’t hold out any hope of it curing my MS.
And given the ever increasing rise of super bugs personally the last thing I would want to be doing at present is pumping my system full of long term antibitoics. This is going in the face of current WHO recommendations that the medical profession drastically scale back ALL antibitotic useage and save them for the most severe infections only.
We are on the brink of facing a world of infections that can’t be treated as we were in the pre-antibitoic era. They are no longer the magic bullets and must be used sparingly and cautiously.
I don’t think unproven, long term antibiotic therapy meets WHO’s protocols.
B
Tbh the people who cant find us a cure or even cause of ms to talk down other ideas is crazy. Until they know what ms is how can they say what won’t help it? Just more umm’s and rrr’s trying to justify 100k a year salary.
I have only had anti-b’s once or twice in my life. Maybe i should ask for them to see if they work with my ms. You never know, might be better than the usual dmd’s.
Darren
Samesies
Don’t confuse “talking down” with critical evaluation. There is a very big difference.
ALL theories, studies, methods and data are subject to scrutiny. It is an intrinsic part of the academic and research worlds.
Without it, science would be nothing but a farce. And we would never find a cure.
Incidentally, some consultants and GPs may earn loads of money, but the researchers and scientists, the people who are trying to find a cure for MS, do not. And if they feel that the very people they are trying to help don’t give a damn that they are working their ***** off for less money than they could earn doing something completely meaningless, why should they bother? They deserve our support, not our scorn.
The problem here is that so far the so called scientific medical system has failed to produce any meaningful explanation for MS and any reasonably priced safe treatments.
Some of the licenced treatments may be of some benefit to some people and the later ones do seem much more dangerous and expensive. The bottom line however is the large majority of people with MS have no access to them in the UK and some of those offered them do not want them.
Those people then have two options, sit and wait to see what happens or try experimental treatments that may be of benefit to them.
When so called evidence based medicine has a solution then it may be reasonable to say experimentation is wrong however we have not reached that point.
We clearly need new ideas otherwise we will not advance, what we call the scientific system has so far failed.
That is extremely material when we say it is the only system we should trust.
Hi I contacted him some time ago as I was very interested in following his method, but I haven’t heard back yet. I’d like to try this method and have been trying to find out the names of the medications on the internet to try this, but would rather do it under his direction. I’m still hopeful he might get back to me. I live in hope…
;-/
Mary
Thanks for all the comments, Dr. David Wheldon is not making any money from his schedule of treatment, and was requested to share his amazing findings by his wife, who wants everyone with MS tot benefit. I intend to follow his schedule on my sister who is desparate to try and has nothing to lose. I am sourcing the antibiotics and hopefully will be able to start in a couple of weeks. Will do video diary of my sister and sincerely hope that I can achieve the same result as Dr. Wheldon’s wife.
When they find anything they will have our support. But if they did they would charge a fortune for it. The only reason why they are looking.
Darren
I cannot begin to say how much that statement dismays and saddens me.
If you met the person who developed Avonex, the person who discovered some of the genes involved in MS or the person currently investigating myelin repair, would you say thank you or turn your back on them? Would you hold them personally responsible for the fact that MS is crazily complicated and no one has worked it out yet?
These people aren’t paid £100k. Most of them will be lucky to be making a third of that, despite having loads of qualifications. Sure, their employer may make a decent profit from their work, but so does every successful business. That doesn’t mean that the people doing the work aren’t doing it for the right reasons. They are certainly doing more good than most people on the planet, including most of us.
As I already said, they deserve our support, not our scorn.
@Aileen: I hope that your sister gets great results.
Kx
I would say why have you not made any real progress? nothing to make my or others lives better. If they found the cure they would charge a fortune. Making money out of us. most are easily on 100 k plus with the hope to make so much more out of us.
Darren
Darren, do you actually know any of these people? In fact, do you know anything about the people who work in research?
As far as “not made any real progress” goes, I can only assume that you have no idea about what little we used to know, just how much we know now or what life with MS used to be like.