It’s basically as my post asks. It’s both sides from feet to toes? Both sides, eye muscles and that. Or am I just really unlucky where the leisons have landed x
So far for me it’s really been both of my legs and feet that have been affected the worst, I recently had optic neuritis so my left eye isn’t 100%. My scans showed I have lesions that indicate my arms, wrist and hands have been affected but to be honest they haven’t been bad,alittle heavy now and again but haven’t lost complete feeling in them the way I have with my feet. Polly x
Compared to many of you guys on here em, I feel lucky. Things that would be noticed on the outside are balance…which was quite bad yesterday. Then all the things you can’t see. That list is getting longer, stress being the worst one at the moment…but that will pass I’m sure. Noreen x
I think it would be quicker to list what hasn’t been affected than to list what has but some of it has come and gone and some of it has stayed. It’s an unpredictable beast but at least life is never dull! When I print off the list of symptoms, I go down it and go yep, yep, yep … That’s life these days … but I am still working 30+ hours a week, still enjoying life.
Today I feel GOOD !! It’s not often I wake up full of beans but today is one of those days.
Tracey xx
I have permanent tingling in both hands, my feet aren’t right (the symptoms vary but include tightness, tingling and feeling like they’re radiating both heat and cold at once). My leg muscles/kness/hips are affected - I’m not sure which bit/s, but when I walk I can tell that my legs don’t move properly. My balance is poor and my stamina when walking had greatly reduced but both are improving, thanks to my physio exercises.
So far, my eyes are ok and fatigue isn’t a problem yet, although I have noticed that I get more tired more easily and more quickly than I used to. I’m learning to recognise when I’ve overdone it, but I’m not as good at pacing myself and planning my diary so as not to overdo it!
I haven’t actually discussed with my neuro where my lesions are - I just know I’ve got them.
I’m not sure I understand the question: did you mean “whole body”? Yes, I certainly feel it’s my body that’s affected. Even though, intellectually, I know the lesions are in my brain and spinal cord, and not, say, in my feet - which hurt, it certainly FEELS as if my feet are the problem, and no amount of reasoning that they don’t have any lesions is going to stop that impression. Obviously, nerve traffic between my feet and my brain is getting garbled, causing the sensation something went wrong with the feet. But I know that really, the fault is in the control system - brain and spinal cord. None of this alters the fact the pain is REAL, not imaginary. It’s just not caused the way pain usually is, by a problem in the part that hurts. With MS, the part that hurts or doesn’t work properly, and the underlying cause, are often in two different places. We can’t actually feel CNS lesions. We can only feel the effect they have on the body, when they start messing up its signalling systems. Tina x