1874, I wish you all the best, it must be a very stressful time for you.
I think it’s very unfortunate that the 'worst day’advice is still being propogated on various forums that I belong to as it can lead to serious problems. I’ve always found it better to use percentages i.e. better days: 40% (with a qualification of what a better day is) and a note about seasonal effects due to temperature etc. That way, I figure I’m covered for fluctuations in condition…
Hello again,
Unfortuanately when my form was filled in all them years ago that worst day advice was the advice given and the question which now appears on the form asking about does your condition vary etc did dot exsist.
Can I please assure you all I am not a spy or whatever else - I just came on here as I was desparetly looking for some advice.
I have no idea what I am doing everytime I post something it doesnt appear for hours and SPUD when I press private message it takes me back to the home page - any ideas
Hi
We still have a problem with spam on the boards meaning that sometimes it can take a while for posts to be ‘screened’ before they appear on the boards. I’m sorry I doubted you but we can get a little paranoid that the DWP are out to get us all as well, I suppose we have heard so many nightmare stories that we start to believe that they would use any underhand tactics to get to us.
I have sometimes had a problem sending a private message so I find it easier to click on the user name instead and from that person’s profile there is another link to send a private message. You may have further luck that way.
I hope you can get this sorted and that DWP can see that you were simply the ‘victim’ of misconstrued guidance on how to complete the form at the time. Hopefully they won’t be too harsh on you as you do have some bad days; you may have to pay back some of the money but hopefully not all of it. I cannot see any benefit in sending you to prison as you are not the type of person that deliberately set out to defraud them and the public furore this would create would probably not do the government and the DWP any good.
I am glad that you have legal representation, good luck
Tracey x
Thanks Tracey, that has worked and I have managed to message Pat.
I can understand you all get paranoid, what a sad place we are living when people with disabilities are to scared to have a good day or express they may be happy or enjoying life.
I just explained to Pat I have always stayed away from things like this I went to an MS conferenct years ago and it scared the life out of me so I have stayed away from anything like this ever since but I have enjoyed reading some of the posts on here the last few days.
Thanks again everyone, hopefully one day I will be able to bring you the good news that this mess is all sorted 
Apologies from me 1878… Hope to see more of you and good luck with the whole thing. Xx