I’ve been diagnosed with RRMS for 13 (or is it 14?!) years now, and in that time I have taken all of the injectable DMDs to no effect. In the last year, I have failed on Tecfidera and Fingolimod due to very bad reactions to them.
I last saw my neuro and asked if I could try Cladribine, only to be told I didn’t qualify as I’d not had any relapses. I had NEVER been told that I had to inform anyone if I felt I was having a relapse, and it’s been so hard to ever get hold of someone that in the end I gave up trying. My GP is well aware of how bad I’ve been over the years but my neuro looks at me and says “Oh, you look well!”, and essentially seems to judge me on my ability to walk into the room. There is no dialogue between my neuro and GP other than standard letters sent covering my latest write-ups from annual neuro reviews.
So I was refused Cladribine and am now on Aubagio, the poor relation of tablet DMDs. Constant running to the loo, ache all over, pounding headache. I know they all have side effects, and I’m prepared for that, but it irks me that because he never listens to a word I say when I visit him, I’m classed as having had no relapses and given a drug that my MS nurse knows little about as so few people take it anymore.
Sorry, in a ranty mood. I should be grateful I’m on anything when others aren’t. Forgive my moodiness!