I finally got diagnosis and its is not m.s but in fact a rare brain disease so far its diagnosis as type one but waiting for spiral consultation for test to be made to see if my spiral cord is compromised which could lead to type two ,type three ever type four but all in all not great at all am glad its not m.s but maybe this ever worse idk yet but my deepest thanks to those of you had chance know in my time here and wish you all best in getting your support soon I just hope get right support now and thanks to all that made me feel welcome good luck
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Thanks for keeping everyone posted - so glad you’ll finally get better support soon and sending lots of strength your way. Must be a lot to process so go gently with it all and take care.
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It is lot to take in more so that found out I was born with it and its be dormant most of my life until now so that is why it wasn’t checked before but now have so clarification I am overwhelmed but I atleast now know what it is and can go get so help and try to live with it as most neurological conditions there isn’t cure but lots different help and support and their support groups just like this one so hopefully there be nice as this one
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