So as I expected, following my second episode of double vision it has been confirmed by my Neuro that I have MS. He says I have some new lesions on my most recent MRI, but overall the areas of demyelination are small and at the time of the scan (which by the time I had it, symptoms had resolved) I had no active inflammation which he says is a positive. He asked me what I think about DMDs, I told him that I have done my research and understand that there is an increasing amount of evidence that early treatment is beneficial and so I’m keen to get on a treatment. He didn’t really comment either way his own opinion about DMDs but agreed that’s what the research shows but also said he has patients who live many good years without relapses so I feel like the decision is really in my hands. He said if I want treatment, he would recommend one of the first line oral DMDs but said he will ask the MS nurses to see me and go through all the options.
It feels like such a complex decision to make! I have no symptoms at the moment but I know want to start a DMD to hopefully prevent future relapses. The question is which one! I want to get pregnant in the future, definitely within the next 5 years and i know that is something to consider. The obvious choice is copaxone (even though the Neuro specifically mentioned oral drugs to me) as its licensed for use in pregnancy now, but I know it’s not as effective as something like Tecfidera which hasn’t been proven safe in pregnancy yet. I know the MS nurse will go through it all with me but I want to be prepared!
Does anyone have any thoughts or experience with this? I know I’m asking a complicated question and everyone is different but I’d love to hear your opinions and if anyone has links to any interesting articles/research that would be great too!