This is my first post, I’ve found the forum helpful when doing some research and was hoping some of you may be able to advise me further. I apologise in advance for my lengthily post.
At the end of December 2016 I experienced a severe case of optic neuritis, I lost all vision in my left eye which slowly recovered over a three month period. Because of this I was sent for an MRI and referral to neurology, in March 2017 after seeing the neurological consultant I was diagnosed with CIS, my MRI showed two lesions at that time. I was sent for a further MRI in July 2017. After the second MRI I received a copy of the letter that had been sent to my doctor and neurologist, the letter states that there are new periventricular lesions present and asks the neurologist to see me again to discuss treatment options. On further reading I noticed the letter had also been sent to the MS specialist nurse. I waited for my appointment to come, but heard nothing, so I called to ask and was told I would receive it via post, eventually it came for December 2017, but on the day the hospital cancelled and sent me a new appointment for April 2018. As this is such a long time to wait I am now paying to see the same consultant privately next week.
In October I visited my doctor due to extreme fatigue and terrible migraines - blood tests showed I has a very low b12 and I was given injections every other day for two weeks for this and will repeat them every 12 weeks. They haven’t made a difference to either my tiredness or my migraines. I had bloods done in January and again in March, neither time did they show low b12.
What would be your opinions on a likely diagnosis? Thanks for reading x