I haven’t been on the forum for a while but have popped in and have found everyone’s posts helpful - makes you feel that you are not alone. Well I have received a diagnosis today and although I was expecting it I still feel slightly numb - keep trying to tell myself that nothing has changed and what has been happening to me has finally been given a name - in fact the Neurologist who is so helpful and has been fantastic throughout actually said ‘see you are not imagining it’.
I have had symptoms of tingling in my legs, L’hermittes (? is that how you spell it), balance issues which have been getting worse along with a long list of other things that made me realise things were not right. Have had several MRI’s the first of which showed some lesions and now this most recent one last month has shown new lesions and a diagnosis today.
So, now I enter a new phase - waiting to hear from the MS Nurse and the one I am not looking forward to is telling our daughters, family & friends. The neuro said I am not eligible for some drugs (that I can’t remember the name of - my head was not taking anything in at that point) so I will stay on the amitryptiline and see what the nurse has to say. Take it a day at a time and see what happens next. My husband has Parkinsons disease - we are both in our 50’s and we have just said “bring it on”.