I know that there is something going on with me. Everyone around me wants to believe that it is all related to anxiety, but I know that it isn’t. I’ve got a bunch of weird symptoms, and it’s hard to know what is related and what isn’t. I am having twitching in various parts of my body, tingling sensations, weight loss, bruising, dry cough, skin issues, and others.
I find that it must be more than just a coincidence that I start having symptoms, have an MRI that shows lesions in my brain similar to those found in MS, but it’s all just “anxiety”?!?
I’ve had 2 neurologists and a neuro-physiatrist tell me that I don’t present with the typical history or symptoms of MS, although one did say that he still suspected MS nonetheless (this was before I had the CSF test that came back negative). All three have also told me that I definitely don’t have ALS, which has been my biggest fear. Bloodwork looking for lyme disease, B12 deficiency, lupus, sjorgren syndrome, sarcoidosis, anti-NMO antibodies has apparently come back negative. 2 EMG tests have been done since June.
My neurologist said she would call me as soon as my CSF results came in, because she knows I am anxious. But instead, her secretary called and booked an appointment to see me in 2 weeks to discuss the results. My family doctor knows the results are negative, and thinks all my symptoms are stress-related, so has not made an effort to explore other avenues. In the meantime, I feel like my symptoms are getting worse and I worry that it’s something else. I feel like I can’t talk to anybody, including my family and husband, because they all dismiss what I am saying - especially now that the CSF came back negative. I’m feeling alone and depressed and scared.
I guess I”m just looking for some advice?