My MS limbo started in February when I was aditted to hospital, the right side of my body was compleatly numb, heavy and I was very weak and had a constant severe headache and foggy ,‘out of it’ feeling.
At first they thought it was an infection causing brain swelling linked to my have chicken pox a few months previous.
I was given and MRI and discharged. 8 weeks later (numbess was now wearing off) I had my neurologists appointment (in May)
He said that my scan showed several spots of demyelination causing my symptoms. I was sent for a VEP eye test (which I had in June) and then back to the neurologist in July. The vep was normal. Now heres the confusing bit… he said that my MRI scans are still waiting to be reviewed and I would then be referred to the neurology clinic (which he said would happen within 3 weeks) and would not be required to meet with him again.
7 Weeks later and nothing… ive had an appointment with my GP who said she’ll try and chase them up as she seemed as confused as I am!?
So I get told I have demyelination then nothing??!! No diagnosis?? no help as to what next??
Ive been back in work since May but I still dont feel compleatly recovered, im taking painkillers every day for the headaches, ive asked my boss about changing hours (as im on my feet for 10 hours shifts) but she refuses. Shes even told other staff that theirs nothing wrong with me and im a hypocondriac!!
Untill i get some kind of answers im stuck!!!