Hi, im a complete newbie to this, my daughter has just been diagnosed MS, literally less than a week ago, so we’ve not seen the MS team or had the more extensive scans yet, but i thought this is somewhere that i will need to help me do the best i can for her.
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Hi Wenchy and welcome to the club we’d rather not have a need to join!
How old is your daughter? An MS diagnosis is a shocker and takes a long time to assimilate.
I’ve had PPMS 24 years…it took 22 to get a firm diagnosis. I’m 69.
keep talking to us and we’ll support you best we can chick.
Boudsxx
Hello, my daughter is 22 years old.
She had a funny feeling in her neck like something was displaced. And pins and needles in her hands and feet, so they sent her for a scan on the c spine. This is when they found the MS. Just waiting for appointments for a brain and spinal scan. And for the MS team.
Hello Wenchy and welcome to the exclusive club no one wants to be a member of.
It is a long hard slog getting a firm diagnosis which will determine what treatment she can have.
It took 17 years of unexplained symptoms before I was diagnosed with PPMS.
Sound’s positive so far. I experienced similar symptoms about 14 years ago but it took a very long time to get a diagnosis. Once I had the diagnosis I found the support and treatment was awesome and my MS has been kept pretty much in check. Obviously there are different types of MS and I consider myself one of the lucky ones. Fingers crossed it will be the same for your daughter.