Hi everyone, I’d like to say a big hello, and that I hope you’re all doing as well as can be.
I’d like to start off by saying that I don’t have a diagnosis, but my doctor suspects Ms and is referring me for a brain scan. I’ve been trying to get just one doctor to listen to me for the past four years, and I nearly cried when he told me he was referring me. I’m feeling a mix of emotions at the moment, being relieved I was listened to, but also frustrated at the unknown. Did you all feel this way too?
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Hi @Everythingisunknown welcome aboard 
Wow, 4 years is a long time to get going
My initial symptoms may have been a first relapse for me - they came in quite hard and fast so, after an optician sent me straight back to hospital with his report, everything started moving. It wasn’t nice to know that something unpleasant was developing fast but, I imagine it must be very frustrating to know that something is wrong and not being listened to.
It sounds like you may have just started a new long road full of scans, tests and appointments. For me, the whole process through to a diagnosis that I kept hoping would just be a mistake took 3 years.
Once you’re in the system, a lot of stuff will happen behind the scenes and, there will be some long waits between each time that you’re involved and get more information.
Everything will happen in time. The best you can do is, take care of yourself until then 
Good luck 
x
Jon.
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Hi,
Your emotions sound pretty typical. Given all the trauma around not know what is the matter with you, you are bound to feel relieved when someone finally listens and takes note.
I’d agree with Jon - things may take a while from here on. As you may have realised, MS can’t be diagnosed by one simple test… You may have neurology appointments, MRI scans, waits for results. And that too can feel frustrating when you wait a long time for an appointment, expect an answer, only to be moved on to the next stage.
There are a few things you can do to help:
- Write down the questions you have. It’s so easy to forget otherwise, with all the emotion. You might also make a list of symptoms, too, if that’s easier.
- When you see someone, ask them what happens next and how long the next stage will take. Otherwise you walk out and find yourself left in limbo. Ask who you can contact if things get worse in the meantime.
- While waiting, if you are able to exercise, I think that does help if only in terms of coping with nerves… I know it’s not always easy.
The good news is that you are now on track to get to the bottom of things.
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