Finished my steroids Monday…leg feels better and is definitely stronger, I’ve been doing my exercises too. However decided to venture for a walk, thought I was doing okay so went further however leg then started misbehaving again and I felt like it was difficult to get back…really thought as with all y other relapses the leg would just go back to how it was. Feeling a little down now…can handle the sensory symptoms but I don’t want my leg to struggle…I wanna have fun with my boy, wear heels and be able to enjoy walks. It feels like it could rock either way almost like a really bendy joint…does that make sense? X
Hi Lisalou, I think you probably need to give it a bit longer to know whether the steroids have had any effect and not rush into too much exercise too soon. It is worth remembering that steroids are not a cure all and for some people do not seem to have any effect. Hope you feel improvement soon x.
Thanks. They have always had a good effect and the use of my leg has returned, however I am getting a little worried now 
maybe I did try to walk too far and I was walking against the wind which is very bad today. Felt a little wobbly which may be the steroids still too as I don’t usually feel like that. When I say wobbly I mean I terms of focusing? X
Hi Lisalou,
I agree with Nanny McPhee. I felt fantastic after my steroids but after a few days my leg seemed to feel worse again. It gradually got better over a period of 3 months or so. It is now almost completely back to how it was originally, except on bad days when sadly, I definitely can’t wear heels. Hope you make a full recovery!
Boo x
Lisalou I agree with Nanny mcPhee think you might have just pushed yourself a little bit too much. I too wish Icould wear heels but not a chance and I’ve been like that 14yrs now never regained full feeling back after a major relapse & if I try it just makes them worse so I’ve resigned myself it’s flats all the way. I sometimes feel like my kids have missed out on things with me like a walk in the park or cycling together etc. They never complained though just said it was great to have a mum that could still have fun without having to do things I couldn’t 
you can still have fun with MS xx
Thanks guys. As soon as I got back in and sat down for five mins it was back to what it was before the walk. I’ve always walked a lot so think I just thought yeah I can do this now. I would only wear heels on a night out…if I’m honest im much more comfortable in low heels or flat shoes but I want the choice. Haha. Maybe I should give it a chance and lie off the exercise so much other than my physio and some yoga? I live my yoga and do feel that the strength is miles better. Led down I was struggling to lift it and put it down and it would shake however I can now do this. I have a wedding in march and I really struggle in them heels so may have to find an alternative rather than feel uncomfortable etc. I really hope the walking improves by the holidays in may too. Thanks for all your support. I would be lost without the reassurance and advice on here.
Try platform wedges for your wedding. I find them much easier to cope with!
Boo x
Hi Lisalou, one of the side effects of steroids is they give you a feeling of euphoria so your mind is willing but your body isn’t. Since I was diagnosed in 2005 I have had several big relapses which have always mainly affected my lower mobility. After each relapse I found I had less mobility and unfortunately steroids never seemed to do much for me either oral or iv. That said I don’t want to scare others on here to think they won’t work for them or they won’t be able to walk so well because as has been said on here so many times everybody is different. If you like to exercise have you thought about swimming? I rely on a wheelchair for getting around most of the time now but find swimming exercise x.
Completely agree with NannyMcPhee and others - gotta give it time. With a bit of luck you will look back and see that, even though the improvement was really up and down day to day, with hopes raised and then disappointment time and again, the overall trend was all in the right direction.
Alison
x
Thanks Boo, think I may do that…an excuse to spend money eh? Nanny McPhee, I’m not a fan of swimming. I love yoga and think I am going to start a body balance class which is yoga/Pilates/tai chi. I did like cardio but can’t manage this as well as I could. Used to love running but certainly cannot do this now. I’m determined to do more classes, surely it has to help. I used to have reflexology too and I loved that but haven’t done it since before my son. Another thing that I think I might start up again. I’m also paying for neuro physio. And I know your all right, I need to give it time. I’m so impatient at times x
Hi Lisalou, I know how you feel because before I was diagnosed I was really fit and active like you and did a lot of walking. Also you have a young child who will keep you active. I am 49 now and was diagnosed in 2005 although the neuro thinks I had had it for about ten years before but with milder symptoms. Thankfully by the time I was diagnosed my children were grown up although my two grandchildren now keep me busy. Why do you have to pay for your neuro physio. I have it provided by the hospital x.
I do get it on NHS but can’t get app till march so have decided to pay for some now as I feel I need it sooner. My son is 3.5 now and we do still keep busy, he doesn’t realise any different as I’ve always done things with him, just worry that I may not be able to do this … Probably worrying at the moment unnecessarily really. I’m 32 and was diagnosed when I was 24 so had it for a while. I think the steroids make you feel a bit down too which doesn’t help. Xxx
Hi lisalou I know how you feel, I remember similar feelings after my steroids. Give it a little more time, perhaps in a day or so try again, but don’t tire yourself, easy for me to say ,I know. Good luck and stay strong Hope x
Sorry, forgot to say the steroids defiantly make you feel down, I hope things improve for you. Hope.x
Yeah they make you down and grumpy. I feel bad as I’ve just really shouted at my boy for no real reason…in my nowtiness I scurried past him too knocking him flying bad mummy!!! Ive given lots of hugs etc but still feel very bad!!! Hope this feeling goes soon. Doesn’t help that I’m not sleeping great yet, again I blame the steroids…have decided to take another week off work to hopefully chill etc as I think the first few days after steroids you don’t chill as such and your mind races! X