Have noticed since being diagnosed with MS back in 2022 my social circle has become smaller and I don’t like…. I’m usually an out going person…. Has any experienced this or know how to deal with it
Hi Janice,
I would search for MS groups in your area where you can meet up with others with similar conditions.
They might be able to direct to ms appropriate classes that you can join for exercise or relaxation .
Hope you find something useful.
EH
Hi Jessica,
Apologies for the incorrect name😃
Hello @JessicaJayne
Yes. I think this is very typical, always having the feeling of isolation. I suspect a lot of other sufferers share this loneliness also, I find comfort in knowing I’m not the only one.
I find participating in group activities a good way to meet and connect with friends old and new. For me at the moment, it’s just being in a choir but, I’m sure there are plenty of other opportunities out there.
Best,
JP
Hi Jessica, sorry for the perhaps intrusive question but do you know why your circle has become smaller.
I’m not a particularly social person but I do know that with MS everything becomes just a little bit more difficult, takes a little more planning and e.g in my case the MS makes noisy, busy places a little uncomfortable.
Some people feel a little unsure and perhaps uncomfortable in relating to someone with MS but I just ignore that and carry on being myself and without overdoing it , show that I’m basically just like everyone else.
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I think it’s because it take longer to plan things and actually having the energy to go out and do things. I’m not sure though
As @Ethan-Hawley says, local MS groups can be good. I haven’t joined mine yet but I know that they meet up for meals, coffee and catch up, cocktail and dinner nights
Just some idle thoughts. Do you have any particular interests or hobbies? Mine are natural history and birdwatching. Fortunately there is an RSPB reserve just a few miles away and , although I don’t join in, there seems to be a group who meet up in the centre for coffees/teas etc, a chat and bit of bird watching. Similarly and although I haven’t attended, there is a local natural history group who have monthly talks etc.
My wife is into ‘crafts’ and there are various local crafting groups. She also plays a bit of Mandolin and Guitar and has joined a group of people who meet by video link to play and chat and sometimes in person .
Just suggesting the above as examples of possible alternatives to meeting MS groups.
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