Obviously everyone experiences MS differently; I just want to know if this is something any of you can relate to and what you do to help ease symptoms.
Today I went shopping with some girlfriends, we got to the mall around 1, but by two o’clock I was absolutely knackered and just wanted to go home (despite looking forward to this all week). Every time we would pass a chair I would have to sit down. Also, when I am extremely tired, I exhibit behaviours that look similar to someone who is drunk (slurred speech, trouble walking) which is very embarrassing, especially when I am with my friends. I also kept getting extremely hot, even though I was just wearing a light sweater. By the end of the day I was cover in sweat. We ended up leaving early because I felt like I was going to drop, which caused me to feel guilty and like I ruined our special day… I told them next time to just go without me
When I got home, I napped for 5 hours and woke up with pins and needles and from the waist down.
I know this is a disease that I will have to learn to live with, but I am only 22. If I can’t even survive a fun day out with friends now; I am deeply concerned about my future. Does anyone know or have any experience and coping strategies with situations like this? Are there treatments available that might be able to help me? I thought of asking my doctor about Provigil to see if it may help with my fatigue, it has gotten so bad now I am too scared to drive anywhere myself.