Hi I’m Nessa
I have been feeling quite alone and a little like I’m mad with how my body is feeling.
To start I have type 1 diabetes and I’m on a pump and manage this well, I’ve been diabetic 5years ,diagnosed at 44.
I also have have a second chronic illness called interstitial cystitis (painful bladder syndrome.
the past three years I have had body aches, (saw rheumatologist,not fibromyalgia).
first strange thing that happened was… I drove to the supermarket and went to hop out and could not hold my own weight, I could not stand up. I could drive home tho. My grandson let me put my body weight on him and helped me to my bed.
my legs felt very heavy hours later when I had to go to the toilet. This did not happen again.
last year or so I have had numbness tingling pins and needles and crawlers, this comes and goes at will.
six weeks ago I was reading my phone watching tv and I felt huge pressure in my right eye that forced my eyes in towards my nose(that’s how it physically felt) vision wise I was blurry and the texts on my phone were squiggly, this lasted about 5 minutes. Then I get numbness from head to toe in my right side for six days. My face felt like it does when you have local from a dentist… it was quite unnerving.
I came right for three weeks now I’m just sore all over numbness tingling balance problems puns and needles every s aches headaches lower back pain.
quite frankly I think my body is stuffed…
i feel very alone.
im having a contrast cat scan next Wednesday
but after reading so many testimonies I feel truly that I’m going to be left alone again to deal with all these symptoms with no diagnosis and no support… I have been thru this with diabetes as they said I was type 2 for a year and I was extremely unwell for that long till one nurse asked for a gas test which confirmed my type one diagnosis. And interstitial cystitis took five years to diagnose… now here I am again… I’ll lose my job soon then my home then… we’ll who cares after that…,
I really think all of you did so well to get to your diagnosis. I don’t no what I have but I no it’s not right for.
ive learned to listen to my body…
thanks for reading