Hi, I’ve been reading many posts on this site over the last month or so, I was hoping to share my story and maybe get some feedback on my story so far and any ideas where this is going? Thanks in advance. I very recently seen a Neurologist after 12 months of feeling unwell and experiencing strange sensations. I gave birth to my third child last February and just prior to delivery I had some strange sensations that I don’t think were pregnancy related, certainly not something I’d experienced.
I went blind in my right eye, all I could see were flash bang symbols, I struggled to text my boyfriend and tell him how I was feeling, one because I couldn’t see half the screen and two I was spelling everything wrong and although I could see it was wrong and then struggled to delete and I retyped it wrong again. Anyway I called an ambulance and when they got her I was quite confused and couldn’t find my words, I thought at the time I was in shock and scared. I got to the labour ward and they induced my labour very quickly. I had my daughter and everything seemed ok, my sight returned and I was as sharp as ever.
A few weeks passed and I was making excuses for lingering aches and pains and fatigue. I was breast feeding on demand so I expected some tiredness but this was like nothing I’d felt before, my right side from my head to my lower back was in severe pain and of an evening when I got to bed and finally started to relax I would get this awful feeling in my right forearm and hand, it almost felt like pre-cramp and I wanted to hit it with a hammer, I was exhausted and it prevented me sleeping.
My symptoms seemed to get worse, I felt very weak down my right side and for the first time ever in October I felt I was walking funny. As my Mother has Rheumatoid Arthritis I was referred to a Rheumatologist who thought possibly RA and Fibromyalgia. I had a spinal MRI and herniated discs at L4 and 5, I was then referred to a spinal Surgeon who said yes herniated discs, they’re painful but you don’t need surgery. He then said a portion of the MRI was not 3D and did a reflex test and reffered me to a Neurologist. I was waiting for an appointment when I randomly received a call that there had been a cancellation, I saw the Neurologist and he said there was some inflammation at T10 and diagnosed a likely past Transverse Myelitis and I had a brain MRI 3 weeks ago, awaiting results, impatiently! Do you think he is looking for MS? Although I start my story from last February I have been suffering intermittently since 2008 with severe back ache, pyelonephritis x2, severe cystic acne (came from out of the blue,never had before) sinusitis, depression, anxiety, this weird feeling in my arm and two lots of tonsillitis. Thanks for reading.