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Confused and frustrated

Just as I was starting to get my head round my diagnosis…

Apparently my consultant still hasn’t decided if I am eligible for treatment - wtf is that supposed to mean?

Feeling quite emotional tbh - I thought I would have some sort of plan by now. I want to know what’s happening!

hi ping

i assume that your neuro is talking of disease modifying drugs (DMDs).

you could argue your case for them.

it will take great determination from you.

have you got an ms nurse?

if not get on your neuro’s case as those two things are the positives about a diagnosis.

the ms nurse is an excellent go-between.

good luck and fight well for your rights to a good treatment.

carole x