New here and really needed some advice on other peoples diagnosis journey!
So i’m 22 years old and first started having symptoms around my 20th birthday, so 2 years now!
my symptoms started with a shooting/stabbing pains in my forearms and shins, these would last for around 5 seconds and come and go sometimes a couple of times in a day or maybe 1 in every other week. (This has since progressed to these shooting/stabbing pains pretty much everywhere and I normally have these a couple of times a day.
I then started to get a numbing sensation, almost as if I’ve had my arms and legs raised in the air for a long time. This sometimes makes sleeping/walking occasionally difficult.
Pins and needles shortly followed which I know have most of the time.
I had a weird bout of eye symptoms which was checked by the hospital and they said was completely fine. They was blurry vision which happened almost over night and started to need glasses, seeing flashes of light and ‘cobweb’ type strings in the corner of my right eye. (These have since gone).
I started noticing my legs and arms would have subtle random movements of twitching. (Still Happens).
I get random intense itching which started initially in just my legs but have since moved to my torso and occasionally my arms, these itches are so intense they make my leg shake and i have to stop everything i’m doing to scratch them.
These were the initial symptoms and then I had started to experience new symptoms (below) which I don’t have all the time.
Cold sensation on my neck (felt like a fan placed on my neck) This was a one off.
Tingling (like pin pricks) on the side of my mouth.
Sharp stabbing pain in my left temple every 2/3 seconds.
Unusual armpit pain that almost feels like a scraping under the skin (I have this normally when stressed).
Arm drop and weakness in arm to the point I cannot use my arms.
Stabbing pain in my neck when swallowing. (One off and super scary)
Toes and hand felt like I had glass stuck in them.
Noticed I bite my cheek a lot when chewing.
New joint pain in knees and elbow.
I’ve seen a neurologist a couple of times who always seems quite dismissive although he did send me for 2 MRI scans one of the brain twice and one of the top of my spine and a lumbar puncture.
I received my first letter about my first brain scan in 2016 to say I had abnormal white matter lesions on my brain and that he has made an appointment for me to see him.
I went to the appointment which we discussed my new symptoms since the last appointment and he decided especially from my armpit pain that he will book me in for another brain scan and a spine scan but with contrast and a lumbar puncture.
The lumbar puncture was fine and the nurse did comment to say my opening and closing pressure was really high and they drained a lot of fluid.
I then had the next MRI on my brain and Spine with contrast in May this year, I received a letter back to say.
"Overall the results are reassuring and there weren’t any changes seen between this and the previous scan in Dec 2016.
When contrast was given none of the areas of abnormality showed any evidence of enhancement.
A further possible small area was seen within the spinal cord which may relate to some of your more recent symptoms.
I will cross-correlate this with the results of your lumbar puncture and discuss this with you further."
Sooooo I thought FINALLY a diagnosis is looking promising at my next appointment in august, but then I’ve received a letter Today to tell me my lumbar puncture came back normal.
I’ve read you can have ms even with a normal LP but it’s around 5% of people that don’t show any signs on the lp so now I feel like I’m not going to get a diagnosis at my next appointment !
I’m just wanting to know how long it took for other peoples diagnosis and have you had a normal LP?