Confused about potential diagnosis / Nervous

New diagnosis and before diagnosis
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1

Hi! I am 34, female and i am confused!

Altogether i have had 3 MRI’s and I am due a Lumbar Puncture on Tuesday.

The first MRI was for something unrelated (thyroid eye disease) and they found lesions on my brain, the second MRI was with contrast and the neurologist put this down to Micro Ischemia. The third MRI was done because they wanted to make sure i didnt have any more changes and low amd behold, there were changes and more lesions showed!

The neurologist think it is likely to be MS and has forwarded me for a LP… HOWEVER…the neurologist and radiologist were unsure whether to class these as new lesions or not because the third MRI was done using a new machine. So my results are being discussed in the neuroradiology meeting to see if i have dissemination in time and space. And after the LP results, they will then determine if i meet the criteria to be diagnosed with MS or not…

The issue is for me is that i dont think i have had what they would class as a relapse?? But i have everything else wrong with me (graves disease, psoriasis, migraines, back issues etc)

Can they diagnose MS with no relapse symptoms? Or with hazey potential relapses such as ‘i saw the dr for veritgo once’ and ‘i had trouble retaining my urine and had to see a specialist’??

At the moment my neurologist is unaware but i keep going dizzy at unexpected times and i am unable to explain this sense of cloud that comes over me, i feel horrifically tired all of the time at the moment, feel like i cannot focus at work no matter how hard i try and i feel like im soooo clumsy… and i dont know if my brain is making my symptoms happen because i think i have MS.

Any advise or comments are welcome, im so lost with how to feel. Im on sertraline thank god it makes me feel somewhat more sane…

2

I feel like we have taken very simlar routes. I have just been diagnosed with relapsing remitting ms after having a brainscan and lumbar puncture. My symtoms have been described as “mild” which is apparently why i havn’t had any noticable “relapses”. My symtoms are extreme fatigue loss of cognition urianry urgencey and and occational loss of continence, migraine with numbness and whole body aches.

This is all new to me and i am only just into the diagnosis stage having been refered to ms nurse now. Will update of i get any more info if your intrested as not sure exactly what “mild ms” means but hay ho

Hope this helps a little.

Flo

3

Leave it to the medics to decide whether your current symptoms are related or not. They need all the evidence they can get to figure out what’s the matter, so don’t worry about telling them too much. Telling them too little is the thing to avoid. I am sorry that you are having such a worrying time.