Comming off Rebif and going onto Oral Meds.

Everyday living
1

Hi, hope everyone’s safe and coping in these difficult times.

Brief history: dx’d approx. 15yrs ago, mild symptoms; vision/balance/fatigue but unnoticeable to anyone who doesn’t know, was put onto Rebif 44mg 3x week IM injections straight away and I’m very grateful that there’s been no significant relapses

The main problem has been the injection site reactions, I rotate sites and do things as advised, not really fussed about injecting or a bit of soreness however I’ve had 3 episodes of developing abscesses and each time it’s a week in hospital and several general anaesthetics to surgically clean the areas - got some cracking scars!

Had a telephone review with my Neurologist today and he advised going on to Oral meds. He suggested a couple and recommended I check out MS Society website and that MS nurse will be in contact.

Just wondered if anyone’s been in the position of coming off Rebif and going into Oral meds, what’s the most effective oral DMD, any side effects ? Do you come straight off Rebif and start Oral or is it gradual ?

I’d be really grateful for anyone’s experiences

2

I was on copaxone first, dead easy but injection site reactions caused me to switch to Tecfidera.

also dead easy.

Of course there are side effects to all drugs but Tecfidera just requires you to eat before taking.

the consequence of taking it on an empty stomach is the most severe flushing a red/orange like the surface of the sun!

You don’t need a huge fry-up for breakfast, just find something that works for you. I have peanut butter on my toast! Yummy!

3

I’ve only ever been on Tecfidera, as Carole says take with food, breakfast and dinner works for me. I’ve been relapse and side effects free for nearly 3 years. Good luck.

4

I’ve been on tecfidera which was no problem at all and I am now taking the last two tablets of mavenclad. Also no side effects for me.