After writing about all the rubbish i take I thought i really should come off Lyrica, since i reckon it doesn’t work and Im on double the top recommended dose. I’ve come off Mirtazipine before without tapering slowly enough and I had dreadful side effects. I didnt seek the aid of my GP or consultant to assist me then.
This morning I was feeling really rough and I forgot to take the morning meds because the pharmacy poppa pack wasn’t out for me (I know - stupid) so I didn’t take my first 300mg and the lunchtime 300mg either. The pain is terrible but still, I had a bad night and a bad stomach anyway, which my husband also has (so the latter is not down to withdrawal - which WILL happen). So I took the first dose and missed the second. And googled withdrawal, which I have done before and decided to carry on with it as a result.
Wow, the withdrawal will be really bad because:
a) I take such a high dose
b) I’ve been on it for years
So, I guess I will get a massive withdrawal. I need to get smaller doses to come off gradually and see my GP regularly and it will take months and months and weirdly it will get worse when I am off it totally.
I’m going to stop myself reading online forums and maybe bore you lot with it.
I have to apologise for this, I’ve been a member for over 10 years and used to post regularly and then stopped and got on with other stuff. Also I can’t stand the new site. It was so much better before they changed it. The old one sent you an email if someone replied to your post for instance.
Lots of people left at that time. I think this is much better than it used to be at one time and I look at it more often nowadays.
Anyway now I’ve got to my question! has anyone else had a bad time coming off Lyrica?
Welcome back. I stopped using the forum when it changed as well. I found getting used to this format a bit difficult. But came back a few years ago. And it’s a great community now.
I did stop Pregabalin (Lyrica) quite easily and instantly. But I wasn’t on a high dose. It was just suggested to me (by a neurologist) that it probably wasn’t doing much for me and so why not stop?
So I’m not offering you any actual experience to help, just wanted to say hello and glad you’re back.
thanks for the advice. I’m also a bit reckless with drug taking, in the sense that I will decide myself if I’m coming off and I take different ones each night as sleep aides. Getting to sleep with my pain levels and lack of physical activity is difficult. I’m just assuming from what I’ve read and my doubling of the maximum dose, that there will be difficulties. Mirtazipine was so unpleasant. I take Lorazepam a few times a week so I don’t get addicted, as that is like diazepam which has such an awful reputation, with individuals trapped on it for decades. I think over the counter Sominex is good occasionally too.
I have been around the site Sue, as I never really left but I’m not sure how often I will post. I’m an active campaigner, sometimes with MSS, especially on benefits, which I’ve noticed you’re knowledgeable about too. I like reading what you have to say, as I tend to agree!
You will be aware of the Green Paper and the Spartacus network response recently? We both posted last year about the last DWP PIP consultation on aides in December 2015. It was so weird when in the end people and organisations were saying PIP as it was, was crap, but better than their awful proposals, wasn’t it?!
So waiting to see how the conditionality for the Support Group, with charities flocking to take the DWP dollar, turns out
Thank you Sue, I’m sure we will keep in touch. Am v impressed with your PIP photo advice and result!
Thanks Carole, because I take tablets of 300mg I’m going to taper faster but watch for signs of withdrawal. If it’s a problem I’ll go onto plan B - get GP involve. I don’t have great flexibility with the weekly blister pack and that’s a different sort of pain.