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Chronic Fatigue :(

Been signed off for another 2 weeks from work and the doctor is alarmed and actually expressed worry that I have developed/noticed new symptoms I’ve never had before. She’s pulling me in for another massive examination and said there might be another referal to a specialists despite a neuro appointment in about 6 weeks.

The issue I’ve got is the fatigue. I could sleep 18 hours a day and have no issues sleeping at night. Currently, the spasms in my joints and the “restless leg” feeling has been keeping me up. Despite taking amitryptyline 10mg at night I am left pretty much bed bound for the day. Just going up and down the stairs twice is enough to tire me out for the day and the next! In two weeks I’ve been off I’ve only gone out for more than 15 mintues three times. All but one I had someone with me.

I’m aiming to do one small thing a day, even if it is just to the corner shop 5 mins away. But is there anything else I can do to help it? Taking low dose amitryptyline isn’t helping, been taking vitamin D and B complex and even taking glucosamine and chronditin, but to no help.

Thanks x

Hey T

Sorry to hear your symptoms are bad at the moment. I can’t offer very much help i’m afraid but when my legs have (they still are) played up, I have taken some magnesium tablets a couple times a day, one in the morning and night. I only got them from Asda .It might be a placebo thing, but I think that they have helped me a bit.My legs do seem better after taking a tablet.

I read about magnesium on a thread somewhere, but can’t remember where, sombody might be along soon to back up the theory.

Good on you for doing one small thing every day, i’m a strong believer in “use it or lose it” when it comes to trying to keep active.

I have good days and bad days. Today is a bad one as I could honestly sleep all day, but I went out to the shop and walked back really slowly and looked at the houses. I used to speed around and be a speedy gonzales, but now I am rocking the pregnancy gait and the slow speed of someone with a zimmerframe- but hey I’m still out and bout!

I have some magnesium so I’ll try that! The glucosamine and chronditin works some days, but not others.

Now, I have to get up the courage to call work and explain what little I can’t about what is going on. Thankfully Dr is very understanding and willing to come out to my house if I have issues when I have bad days! Just wish everyone was so open about the limboland!

Thanks for the suggestion, I’ll make sure to give it a go! x

I have good days and bad days. Today is a bad one as I could honestly sleep all day, but I went out to the shop and walked back really slowly and looked at the houses. I used to speed around and be a speedy gonzales, but now I am rocking the pregnancy gait and the slow speed of someone with a zimmerframe- but hey I’m still out and bout!

I have some magnesium so I’ll try that! The glucosamine and chronditin works some days, but not others.

Now, I have to get up the courage to call work and explain what little I can’t about what is going on. Thankfully Dr is very understanding and willing to come out to my house if I have issues when I have bad days! Just wish everyone was so open about the limboland!

Thanks for the suggestion, I’ll make sure to give it a go! x

Limboland puts you in a bad place mentally. I know as I was and am sort of still there, even though diagnosed nearly two weeks ago. I’m sort of out of limboland, waiting for the MS nurses to call me and waiting for a follow up neuro appointment in January. It feels like limbo, but worst as I now know I have MS. As least in limbo i felt that things might work out ok or that I would wake up for it all to be bad dream.

One thing I have learned and tried to do is keep thinking about the things I can do and not to dwell on the things I cant or don’t think I can do. Its important to keep popping to the shops and plodding along the best you can. Dont overdo it, but dont fall into the trap where you tell yourself not to try to do too much as you may self conciously be thinking things are worst than what they really are. Your probably not like this, although I was at one point.

I have read somewhere that sleep is important for people with MS so dont feel bad about sleeping and feeling tired. Try to get eight hours sleep a night but also try to stick to a pattern with your sleep. Easier said than done I know with restless and achey legs.

My issue with the fatigue is that I can’t stick to a normal sleeping pattern. I get up do things, bit by bit, resting in bed or a chair before moving on the next thing. However, I cannot watch films or tv programmes as I just conk right out! Maybe another reason for the neuro appointment as that is more pointing towards possible narcolepsy. But GP won’t refer me to sleep specialist until I see the neuro.

Every day I aim to complete or do just one thing. I struggled with the thought of heading into city centre, but I’m making myself go. I have my partner with me so that’s ok. I just couldn’t imagine doing it on my own as I feel so uneasy on my feet. I managed the bank on my own, but that didn’t involve much walking between the bus stops and the bank/my house. GP advised me to have someone with me when going out due to dizziness/uneasiness on feet.

I did get into that down spiral of feeling like I couldn’t do anything, but there’s nothing I can do now until I find something out. So one day at a time and one small mountain to conquer each day- even if it’s a trip to the corner shop!

Thanks for the support! x

My issue with the fatigue is that I can’t stick to a normal sleeping pattern. I get up do things, bit by bit, resting in bed or a chair before moving on the next thing. However, I cannot watch films or tv programmes as I just conk right out! Maybe another reason for the neuro appointment as that is more pointing towards possible narcolepsy. But GP won’t refer me to sleep specialist until I see the neuro.

Every day I aim to complete or do just one thing. I struggled with the thought of heading into city centre, but I’m making myself go. I have my partner with me so that’s ok. I just couldn’t imagine doing it on my own as I feel so uneasy on my feet. I managed the bank on my own, but that didn’t involve much walking between the bus stops and the bank/my house. GP advised me to have someone with me when going out due to dizziness/uneasiness on feet.

I did get into that down spiral of feeling like I couldn’t do anything, but there’s nothing I can do now until I find something out. So one day at a time and one small mountain to conquer each day- even if it’s a trip to the corner shop!

Thanks for the support! x