Hello to you all. I haven’t been on this site to post a question for some considerable time. I hope you are all as well as you can be and would now like some feedback about changing from Tysabri to the oral drug Fingolimod (Gilenya).
I have been on Tysabri for over 3years having 6 weekly infusions since severe relapses in 2011. I am JC Virus positive and realise that the longer I am on Tysabri the risk of PML increases.
There may be the option of changing to Fingolimod or another oral drug and would greatly appreciate any feedback from those of you that have been in the same situation and are indeed now on such medication? One thing I would like to know is…do you have to have a Lumberpuncture as one of the tests before you start on it??
Thank you for reading and letting me ‘pick your brains’ I now look forward to any replies.
Kind Regards Equus