I finally started the treatment suggested by a Neurologist back in November!
Yesterday I went to my first CFS/ME group therapy session and I have to say that I’m quite impressed. There are just over ten of us in the group, run by a Specialist OT. An interesting point she made was that CFS is on a spectrum of disorders with Fibromyalgia (pain symptoms) one side and FND (functional symptoms) on the other. The course is run from quite a holistic viewpoint, which made me very happy. It is just a shame that such an excellent NHS resource is so under-supported. Only ‘2.2’ trained staff in Lincolnshire!
I have a relaxation disc (small donation made), an activity diary to keep, an information booklet for me and a separate one for my relatives/carers. The information is clearly presented and makes sense! Getting to the course means that I have to book an on-demand bus service a week ahead, for my 2 1/2hr course, and it makes for rather a long day.
In other news…not long to wait for my second neurology appointment, which I hope will be able to clarify my diagnosis one way or the other. I’m appealing my PIP decision soon, just need some supporting paperwork from my GP and OT. My mobility scooter is making a positive difference and my OT has told me to look at it as something that enables me, at the moment (I was worried she’d reprimand me for getting one!) and I’ve just hired a cleaner to do a couple of hours every other week. I was really struggling with housework.
Have any of you had experience with CFS/ME therapy?