Morning all, this is my first post.
I’m waiting for the doctor to ring again and really hoping for a referral to neurologist.
What I’d been led to believe 10 years ago was CFS clearly isn’t and I need to see a neurologist but the doctor seems to be protecting everything out.
I’m really nervous about them ringing and that isn’t really like me. Don’t know if I’m explaining badly or what it is but I’m just not getting anywhere. I don’t feel confident in explaining myself anymore for some reason.
Oh boy, hope some of that made sense.
Best wishes to all,
Stu
Hey,
What symptoms are you having? Have you spoken to many doctors yet?
When I had my first set of lesions, the gp rang the neurologist in front of me for advice and next steps.
They then booked me an appointment.
This time I have had a number of delays, first my own anxiety and denial, then delays for a gp appointment, blood tests and i now have an appointment for an mri booked.
I won’t be seeing the neurologist face to face until after the mri. I didn’t last time either.
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Hi there,
Good to hear your GP is so helpful. I have had good ones in the past but since we’ve moved house (between lockdowns) it’s not been great.
When it seemed I had CFS my GP was at a loss to offer anything other than painkillers - not that I was at the surgery regularly or anything, there didn’t seem much point going to him with CFS problems as there wasn’t treatment anyway.
My health took a very definite downturn in October 2019. Much dizziness, patches of burning sensation on my body (mainly but not exclusively head and upper arms) severe urgency of both bladder and bowel, restless leg and at its worse arms as well, jolts of electricity almost in my spine (I can’t sleep on my back as this always triggers it, though sometimes it occurs while sitting also) as well as feeling lousy every day. Oh, and terrible dry eyes at night has been from day one too.
I actually spoke to a different doctor the other day and he wants to see me face to face so I live in hope!
I’d love a diagnosis - whether that be MS or something else - as hopefully then there might actually be a treatment of some kind. Ten years of illness and no real treatment is pretty miserable - though I’m sure there are many here going through worse than me. I’m definitely feeling a bit sorry for myself right now.
All the best,
Stu