My symptoms concern me. They come and go from day to day and seem to be getting slightly worse, though not there all the time. When you have developed symptoms e.g. difficulty walking on one side. Is it normal for them to present EVERY time you exert yourself or get hot. But subside when you rest and cool. I never get a period of complete recovery nor have I had any specific attacks.
I have two occasions in the 3 years since seeing the neuro where I can notably say I have new symptoms though I have never had recovery from these symptoms. They are always there whether mild or bad. About 80% of the time symptoms are mild then 20% of the time bad and I need either assistance or my new thing… the walking aid.
1 month since diagnosis and still nothing in the form of support. I emailed the neuro who today in response asked if there was anything he could do and gave me the name of the MS nurse though no contact details. What the?!? I’ve not replied as I may get angry and as my prognosis is in his hands, so to speak, I don’t want to get on his nerves.
Anyway, I think this forum is great support and I’m glad I found it!