I’m brand new here after being diagnosed with MS last night and was hoping for your opinions on my case. I had Bells Palsy in January this year which i recovered from perfectly after the prescribed medication. In about March time I started to notice a numb feeling in both of my forearms which is more or less there constantly now. I also have a strange sensation on the right side of my head like creatures running through my hair but that comes and goes. I went to see my GP as was concerned it was neurological after the Bells Palsy issue and he mentioned MS. Had a series of blood tests which were all fime and he then referred me to the same consultant I saw about the Bells as have private healthcare through work.
I saw him and he said he was sure it wasn’t MS and my GP shouldn’t have told me that but wanted to send me for a MRI scan of my brain and C-Spine, which showed inflammation of my nervous system and that my spine was in the wrong place. This prompted another load of blood tests and another MRI scan of my Thoracic Spine.
I went last night for the results and was told I have a Aracnoid Web next to my spine which is pushing it into the wrong position but a lot of people have these and they are a-symptomatic and rarely diagnosed as only picked up on MRI scans when they are looking for something else. He seemed quite focussed on this for the first part of the appointment and after asking me questions about head injuries (none) and pricking me with a pin all over (sensation fine) he dismissed it as a red herring.
I then asked about the blood tests and what the inflammation of the nervous system indicated and he said as all the blood tests are clear, it means I have MS! Just so matter of fact.
I don’t have any other symptoms - apart from tiredness, but I have 3 children and work full time so who doesn’t feel tired!? I just feel like it’s such a strange way to diagnose it. Because it isn’t anything else it must be MS?
I’ve pretty much spent last night and today either in denial thinking this can’t be right, or crying at the prospect that my life is potentially going to change so dramatically. I don’t know anything about the condition and feel totally in limbo.
He’s prescribed some steroids to try and ease the symptoms in my arms and said to go back and see him in 2 weeks and that’s it?!
Am I being stupid and in denial whereas really I should just be accepting it, or do I need to push for more evidence to confirm the diagnosis?
Sorry for the essay but so much going through my head right now.
Thank you for taking the time to read it xx