I was active on these boards a few months ago while I went through diagnostic tests, eventually I was diagnosed with Chiari Malformation plus syrinx. I underwent brain surgery in July with the aim of preventing any further damage to my spinal cord but damage which has been done will not heal. I’m very upset because I have bowel urgency problems which have led to a few accidents but today I had a bowel accident without even realising. I’m mortified. Does anyone here have bowel incontinence and if so how do you manage it? Luckily I was at home but I’m scared to leave the house now.
It is an unmentionable problem but it is a fact of life.
I had a major poo mishap some years ago.
My son’s cat needed to b e taken to the vets. I drove him and his cat there.
I was already feeling anxious about needing the loo but by the time he came back to the car I was sat in the biggest cow pat ever! I was mortified but he was really sweet about it.
Since then my bladder incontinence means that I spend a fortune on tena pants.
They can deal with most things and hold a moderate sized poo safely.
May be worth trying them.
Ask your GP to refer you to the continence team. I’m ruled by my bowel movements, so far no major accidents however I don’t think it’ll be long before I start using Persteen or something similar on a regular basis.
Oh I know exactly how bowel accidents feel.
Had 2 this week myself. But fortunately, like you all but 1 of them ever happened outside of my home…and that`s bad enough.
How do I deal with these times? Well as I am quite disabled and reliant on hubby and carers for all personal care, they do most of the sorting out.
I have heard about folk using Peristeen, as a way of emptying the bowel before going out. But I dont feel the need for it yet.
Look it up and see if you think you would like to try it.
I’ve posted on this subject before as I had physiotherapy 6/7 years ago and this helped me immensely.
Try this exercise programme -
Sitting on a chair tense your anal sphincter muscle as hard as you can, relax, now pinch it half way, hold for 10 seconds and relax for 5 seconds. Repeat this exercise 10 times and 4 times a day.
Before this exercise I used to look at places where I could take a dump (as my son would say), like supermarkets or large busy pubs and now I’ve confidence I can hold on better.
I’m fortunate that 5/10 mins after getting out of bed in the morning my urge to go is high and gets it out the way if you know what I mean. This is a weak pelvic floor pan I believe, but I’m near the toilet first thing - even in hotels.
Best of luck.
I am now able to manage my bowels using a system called Peristeen. This is a self administered irrigation that means I have 98% security so that I can go out and about with confidence. You can check it out online, ask your GP or refer to an incontinence clinic. I am about the most uptight and repressed person I know and I got through the referral with ease and am so happy that I did.