Bit Worried

New diagnosis and before diagnosis
1

Feeling a bit scared at the moment, this may be long so i apologise in advance

I’ve had “weird” symptoms for more years than i care to remember, but as per didnt want to bother anyone with them.

Well, two years ago i had yet another fall, totally out of the blue at the my daughters.

i landed on my shoulder sideways and at first i wasnt too bad. i had an mri eventually, (almost a year later). it showed a bit of damage and pinched nerves. so had physio set up.

things started changing and i will list what has happened since. maybe someone out there can offer me some advice? support?.

Tingling started in my right hand nov/dec 2016, it has spread now to both hands and arms (complete numbness) underarms, breasts, a ring of numbness around upper torso which sometimes feels really tight like a tight belt. also bottom of my tummy is numb and my buttocks,thight, and shins, soles of feet are also numb, and my bladder and bowel are misbehaving, i wee a lot and dont always make it to the loo and if i need to poo i really need to get there!.

i sometimes get blurred vision, and blink a lot to try to clear it (which it eventually does)

i have really painful cramps and spasms to the point my hands will fold inwards and i cant use them and i have to wait until they "undo " themselves. same happens with toes .

over the past 10 years ive had a lot of falls, but now i also drop things, i guess because of my numb hands?

blance is iffy but managable, feelings of abject fatigue most days , also feeling of electric shocks in lots of different parts of my body but particularly my arms and hands and feet. the pain is awful!

i get a buzzing feeling (only way to describe it) in my right leg and foot and my foot will jerk all over the place and stops me sleeping sometimes, i also have itchy skin feeling like insects crawling over me sometimes, hands are shaky typing or writing is difficult, when i stand from sitting my body will shake all over for a few seconds then it stops i blanace myself to walk and im fine.

also i can no longer orgasm.

any thoughts appreciated, i have just been referred to a neurologist and my appointment is 27th april 2017.

2

Hello Laine

You do seem to have quite a lot of symptoms which could be neurological. Do keep in mind though, that MS has a very long potential list of symptoms, many of which are shared with other diseases/disorders.

It’s a good thing that you’re seeing the neurologist quite soon. What I’d expect at that appointment is for the neuro to take a verbal history from you of what has happened and when (it’s a good idea to take some notes with you to remind yourself), plus a physical examination (tuning forks, pin pricks, etc). S/he will then determine what tests are appropriate. You may be referred for an MRI test as well as others, perhaps bloods and/or a lumbar puncture.

I can totally understand you feel quite unbalanced at the whole idea of neurological testing. It’s a scary time. Sometimes it’s only when you try to remember exactly what bits of you are going wrong that you tie it all together and come up with a frightening answer. So don’t forget, you don’t have MS until the neurologist has done all their tests and come up with a diagnosis.

Do keep coming on here though. It’s a great place to get support for your various worries whatever your eventual diagnosis.

And if in the end it is MS, it’s not the end of the world. There are drugs to help with symptoms. There are disease modifying drugs to help prevent relapses. And there are therapies to help you maintain what you’ve got physically and cognitively or to improve on where you are right now.

Sue

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Thank you so much for replying Ssssue.

i know there can be no reassurances at the moment, but i will definitely let you know how the appointment went with neurologist.