Can anyone help me with my question, I was diagnosed with MS in June 2003 and I also have now been recently diagnosed with fibromyalgia. I already get higher rate mobility DLA, I was just wondering whether I would be entitled to anything else. I do work full time but I am finding it a struggle, I am off sick at the moment with the effects of the fibromyalgia and the side effects of the medication for fibromyalgia but I am due to go back to work next week and I really do not know how I am going to manage. My new recent line manager does not understand how I am feeling I have been signed off for nearly three weeks but she said to me the other week if you feel better, come back to work it won’t matter about the sick note (some hope), the reason I have been signed off is I have been suffering a lot recently with a lot of pain and also with the side effects of the medication. The situation with my fibromyalgia I feel is getting worse and my MS is also really kicking in, I have been doing my job for 24 years and I cannot afford to give it up and my employer with the Local Government Pension Scheme Ill Health Retirement Pension makes it very difficult for people to go off on first tier ill health retirement, I work for one of the emergency services in a clerical capacity. I was thinking if I could get another benefit on top of the DLA, I may be able to go down to 30 hours per week and for it not to hit me to much financially, as I live alone and I have no other means of financial support ie a partner. Of course it would help enourmously if I could leave work on first tier ill health retirement, and it would help my stress levels as well, as with everything as it is at the moment I am feeling very stressed and hurting big time, and I am feeling so tired but cannot sleep when I get to bed.
I have a rheumatolgy appointment here in Bristol this Friday morning and a MRI scan on my Brain this Friday afternoon which my Neurologist has requested me to have as because I have not been feeling to good with the MS lately, I think he wanted to know what was going on, he has not requested a MRI Scan of my spine which I am rather puzzled about, he did mention about having a lumber puncture but I am rather worried about that, as that sounds horrible. I am feeling very upset and worried at the moment, can I ask for your help and advice.
I am 45 years old.
Thank you and take care all of you.